Friday, August 2, 2013

Benign Familial Hypocalciuric Hypercalcemia

Benign Familial Hypocalciuric Hypercalemia.

We found out what has been cooking with our sweet Carter.
Still working on the details- but the gist is that she was born without calcium receptors. A mutation on her 3rd chromosome.

They are telling us to take (almost all) vitamin D out of her life (sun and food sourced).

We've started the second and third opinion process, but a few things we know for sure:

We have to make some major changes.

We have to make some financial changes and some lifestyle changes.

We've got to re-prioritize our priorities and make sure ALL of our babes are honored and fulfilled with the extra barriers in the way.

We have GOT to make some bitchin' lemonade from these SUPER sour, damn lemons.

And we have to stay positive and know that our sweet sweet girl will be A-ok, with the help of doctors and with some good old gumption from her crazy clan.

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